About PKU Northwest

PKU Northwest is here to cultivate a sense of community among those who have PKU and other inborn errors of metabolism in the Pacific Northwest. We are rebuilding the organization and want you to come along with us!

Our hope is that this website becomes a space to house multiple resources, share information about events, and gather input from the community.

By providing resources and creating connections, we can continue building a community, connecting those with a PKU diagnosis, and empowering them to thrive.

What People Say

Being a part of the PKU community creates connections to remind everyone with PKU that you aren’t alone.

Maridith, PKU Adult

The PKU community is like one giant family! Going to events, especially camp, is my favorite part.

Lauren, PKU Adult

I love being involved in the community! I am so excited to continue to put myself out there and meet others with PKU.

Matt, PKU Adult

Let’s build something together.

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