2022 Family Camp is Thursday, June 2nd - Sunday, June 5th @ Washington Family Ranch | REGISTER NOW!

PKU Northwest

Providing support, networking, and community engagement to Northwest families and individuals with PKU and Allied Disorders




Thursday, June 2nd - Sunday, June 5th @ Washington Family Ranch

Past Events


18th annual PKU Northwest Family Camp!

Virtual camp on 8/21-8/22 includes:
A chance to connect with those with PKU (or their caregivers) in your age group and talk about what matters to YOU. There will be breakout groups for kids, caregivers, teens, and adults! A cooking demo with Brenda Winiarski (we’ll send you a list of ingredients so you can cook along at home) Virtual Olympics (yes, you can still participate!) Virtual talent show (you can still enter if you submit your video by 8/9!) Small group sessions with leading PKU researchers and scientists and MUCH MORE! See the full agenda here: https://www.accelevents.com/e/PKUFamilyCamp2021#agenda

Distance and disorder are not limits: wherever you are in the world with an inborn error of metabolism, you're welcome to join us! 

2020 Summer Camp

Please bring your family out June 4th - Sunday June 7th for our 2020 PKUNW Family Camp. 

Oregon PKU Harvest Event - November 9, 2019!

Join us for a PKU celebration of harvest season! This free event is open to everyone in our PKU + allied disorder community

We'll provide low-protein soups and sides that celebrate what's in season this autumn. This is a relaxed social gathering where we can reconnect with one another. You might pick up a new recipe or two to keep you inspired this fall and winter

Saturday, November 9, 2019 from 1:00 PM to 4:00 PM

SMILE Station - Portland, OR

Click on the link below to RSVP so we can provide enough food for everyone

Washington Summer Family BBQ & Meet-up 8/25/19!

Come hang out with other NW families for a day of fun activities and food in a classic Northwest Setting.  

Sunday August 25th 11am - 2pm @ Snoqualmie Falls Forest Theater in Fall City, WA. 

This venue has unique private access to the base of Snoqualmie Falls - don't miss out, 

This event is free to attend, but please register all attendees so we can plan for food.

PKUNW Family Camp

Video by Kurt Sensenbrenner